Sunday, October 31, 2010

Why organ transplant

Days after I was on the organ transplant list I made a list of reasons for myself as to why I should be on the list. For some reason my life experience, lab test results and internal suffering was not enough. I had to see it on paper in order to try and justify it to myself.
I have been on oxygen 24/7 since the end of June 2010. So I keep at a level that is good enough for me just sitting or laying down. If I have to stand up or move or talk I have to adjust the level higher.
This was a list I created months ago:
Moving in bed, walking to the bathroom, brushing my teeth, bathing, talking and standing up. I kept telling myself, this is not normal Alma. It may be part of my world and others dependent on oxygen supplementation but it certainly is not normal. Nor are the coughing spells I go into. I can cough anywhere from 3 to 4 minutes to 20 to 25 minutes. These spells come from anything. Sometimes it is from exertion where I did not get enough oxygen, sometimes it could be the weather. Be it humidity, heat, cold or wind. It could be pollen, dust, perfume or scents. People with IPF (Interstitial Pulmonary Fibrosis) are hyper-sensitive to many smells.

No limit

There is no limit to how much love your heart can hold. So put a little more love in your life right now.

There is no limit to how much beauty you can admire. So make a point in each moment to see some new beauty you've never noticed before.

There is no limit to how much joy you can experience. So go ahead and feel the joy that lives inside, as you generously let it flow out to the whole world.

There is no limit to kindness, to hope, or to faith. There is no limit to the goodness and value that you can imagine.

Though some things in this world are occasionally in short supply, there is no limit to the best things in life. There is no limit to what really matters.

Treasure those good things that have no limit. For there is no limit to the richness they can bring.

-- Ralph Marston

Celebrate Life,

Saturday, October 30, 2010

Accepting an Organ Transplant

My biggest struggle with being on the lung transplant list is that someone has to pass in order for me to get lungs. I have thought about this for months, perhaps years since my father had a lung transplant 9 years ago. No matter what, it is still a tough situation to process. I have met a few earth angels along the way that have given me ways to accept this so I should pony up, take the positive and run with it. The only thing is that this is very difficult. I have had to come to the computer four times already trying to write this entree. This is so difficult to put into words.

The best example I could use is that if I had met anyone with any of my cousin Teddy's or niece Patricia's organs it would have comforted me. Unfortunately too much time lapsed for them to give organs because of the way they passed. The comfort and joy that I believe I would feel if I knew my relatives would have given others a second chance in life is what helps me to accept this gift for myself. I was able to process these feelings better when they were for my father but it is very different to internalize for myself.

This is assuming that the organs I receive are from someone who has registered as an organ donor. Now imagine getting organs from someone who was never on the list. These dedicated employee's that work for UNOS make calls to families during the worse times of their lives. These people are grieving and making arrangements for their loved one's passing they are asked to save other people's lives through organ transplantation.

Ignite your passion

Ability is about more than skill. Ability is about more than knowledge.

Though skill and knowledge and experience are important, there's something even more powerful that drives ability. It is passion.

If you do not have a strong desire, fueled by passion, it doesn't really matter how much skill you have. If you lack passion, it doesn't matter how much experience or knowledge you have.

When you are truly passionate, that brings your skills and knowledge to life. When you are truly passionate, even if you lack sufficient skills you will find a way to acquire them.

Passion compels and enables you to connect with whatever is necessary to express and fulfill that passion. Passion pushes you into action, and supplies the energy for perseverance.

What are the things that ignite your passion? It's well worth your time and effort to know exactly what they are.

-- Ralph Marston

Celebrate Life,

Friday, October 29, 2010

On Transplant List

Gosh, I have been procrastinating on posting and now that I actually am sitting down to post I am overwhelmed by everything. I guess writing what I am about to say is another way of having to face the reality of my health and my life.

It is 6 years this month that I am on oxygen. I am now on the organ transplant list and I am waiting for two lungs. A lot of life has transpired in the last 6 years and I could never recap it all but I must say that I have put my best foot forward and have lived my life with a zest like never before. Out of the last 5 years, this past year has been the most challenging of all. I am unable to play volleyball and get around as before. I basically stay at home and wait for assistance to go shopping, to clean my home, for meals and any leisure activities outside my home. However, let me tell you what I can do!

I can keep my positive attitude.
I can keep a smile on my face.
I can keep working out at my pulmonary rehabilitation sessions.
I can keep making goals and visualize them.
I can keep making affirmations and I can pray.
I can keep working towards making myself stronger before surgery so I can come out stronger from it.

Decide to enjoy

Even the most difficult work feels easy when you let it flow from your heart. You can take on the most complicated and challenging tasks with effortless ease when you let go of your resistance to them.

Do you feel resentment about what you must do? If so, you're only making it more difficult and unpleasant.

Can you choose instead to feel sincere gratitude for the opportunity to get it done? Of course you can, and by so doing you dramatically improve your performance.

If the effort feels disagreeable, that's only because you want it to feel disagreeable. And why exactly would you want that?

Resentment and resistance will only bring you down, and cause you to work longer at doing what you don't want to do. Yet it is always within your power to make a positive change.

Decide to enjoy what you're doing, and just like magic you'll suddenly be doing what you enjoy. Not only that, you'll be doing a much better job of it.

-- Ralph Marston

Celebrate Life,

Alma from Raw Foods Wealth 2 Health

Alissa Cohen Raw Food Store